New year!

So My goal is to blog about my life and family Not just update everyone on Bo. I don't want anyone to think I am leaving out my 3 other amazing Kiddos! Brooklynn starting to walk a little she thinks she is so big, Leksi and JOhnny love that she will walk to them. She is so funny to she has this funny little laugh and she laughs the whole time she is tying to walk. SHe is very cautious, Bo is not he just goes with out thinking. Brooklynn stands there thinking about it and takes her time, Bo has NO I mean NO patience ( not sure where he got that maybe His DADDY) He tries and goes with his arms flayling. I am excited that I have finally taken the time to work on the blog so I can now upload pics and stuff here is a pic of Brooklynn just hangin out like she is so big!

Bo During the sweat test!

~sigh~

So we are now a week into having a pump and let me tell you, other then the maintenance for me and John it is going so great! Amazing sugars all day long. Guess what else I get to do? Sleep through the night for the first time since the babies have been home REALLY the first time! They said I do not have to check his sugar at 2am anymore? What? Really? I did the first 4 nights because I was just worried what if his sugar gets too low? Well on top of all of this Poor Bo is sick well he has been sick with a cough for ever since Halloween. 4 rounds of antibiotics, steroids breathing treatments you name it we have done it! SO yesterday we go get our synagist shot and we had a little pow wow and the Dr's feels like since he has been sick for so long it was time to do something else? I said OK Like what? They think it is time for Bo to be tested for Cystic Fibrosis! I of course immediately ask Why, What for what do you mean??? I also Know exactly what this is and I can handle a hell of a lot of stuff and have for 14months of Bo and Brooklyn's Life but I sure was not ready for that. One of my Clients and friends gave her nephew a kidney 3 years ago because he has it and his life expectancy is not like ours. Yes he is doing very well but he is also very sick. The test is called a Sodium chloride test we have to do it down town tomorrow the 7Th at 10am.

The test is done, Now well we wait! UGH~ he did a great job No we wait!!!!

It's Pump Time!

So we are getting a pump! WE are getting a Animus one touch ping! Its on order we of course have to wait for Insurance to go through OF COURSE!! Good grief really what is the point of insurance. PLus Monday we are getting tubes, most kids it would be a short and sweet procedure Not Bo we have to go to Children's downtown and they had to do a stress test on HIm Thusday and a physical to make sure he can handle being put under. Since he has diabetes we have to do an IV he has to stay in recovery longer and they will monitor his breathing, sometimes if your sugar is high or low you can get this rapid breathing and you get flush. I can pretty much feel Bo's skin and know weather or not his sugar is high. It is also a challenge since he has to fast not good for him so we have to get him up at 1:45am to eat, he could have clear liquids from 2-430 but he can't have water at least not a lot and pedyialyte and apple juice will cause his sugar to be high if it's high when we get there they will not do it! Let me tell u he needs tubes he has been sick really since Oct 29 he has been on antibiots now the 3rd round and its 21 days!! Ugh~ It's crazy how diabetes can affect every single aspect of your life Bo catching a cold causes his sugar to go crazy its so weird how that happens! We had a fantastic Thanksgiving yes a little sad since we had Megans funeral Friday But so much to be thankful for!

Continue

So I didn't mean to post that last one until I was finished. I told you I sucked at this! This week is Thanksgiving can you believe it? Some sad news Megan Passed away yesterday Monday Nov 22, As I am so thankful she is out of pain it was really hard seeing her in so much pain. My heart aches for her 3 children and her husband. It is hard enough losing a loved one but the week of thanksgiving ugh~ They will still celebrate as a family Thanksgiving we are making them a feast where they can sit as a family and enjoy each other and celebrate Megan's life. Then Friday we will Have her funeral and again celebrate her life, she will be missed and I pray her family gets through such a difficult time! We are all well we are gearing up for the holidays and I am so excited to cook with the girls Wed evening. Leksi is really excited also. MR BO is being a pain lOL.. He still has a double ear infection which makes his sugar CRAZY which makes us up his insulin then add a humalog. SO now he is getting Insulin after each meal so he is getting stuck at least 3 times a day from insulin and 1 with is growth hormone!! UGH I hate that I am pretty sure we will move to a pump come Jan 1 after we get some tubes and a healthier little man. So all in all we are well I hope everyone had a fantastic Thanksgiving! I swear I will figure out Pics soon I just need to take the time to do it!9I have so much free time):)

Busy

I swear I suck at this blogging thing! I can't figure out how to put the stupid pics on here ugh! It's pissing me off! We have had a pretty exciting few weeks we had to go up in Bo's Insulin 2 times, now we are giving insulin after meals we will see how long this last before we he gets a pump? I don't like sticking him so much but right now (knock on wood) it's working! SOOOOO I gave my speech I really did it I was totally terrified but I got up there John got to come with me and I did it!!! I wanted to say so much more then I did, but I am just glad i did it and I did it with out crying! whew!!! I was proud and SO glad it is over. It is hard to believe next week is Thanksgiving where does the time go? Leksi is so funny she is so excited to hang out at my moms on Wednesday night at my moms where we spend hours cooking, wee are making much more this year some for our good friends and Neighbors Megan our Neighbor is Ill very Ill she is at Hospice house where she is fighting everyday to stay alive We are hoping for her 3 kids sake she can make it through thanksgiving?

It's Birthday day!!!

I can't even explain my emotions right now! As i sit here at 10:10 pm the day before the babies turn 1 it's so bitter sweet , it has been the longest year of our lives but the fastest! Last year at this time I was laying in bed with the highest blood pressure ever imaginable and here we are 1 year later! I do have some updates as far as Bo goes, he got a cold which is a bad thing when you have diabetes everything in the world has sugar in it and the Dr all they care about is keeping him hydrated well his sugar went up to 299 so on Monday we started insulin it actually has made a world of difference maybe just maybe we will be good for a while! We also met with the Rehab Dr on Monday, this has been a long time coming also we have had this appt since April 5Th yes April. So he came in and did all kinds of things and of course wants to do WAY more so we will start all of that next week! Starting with some muscle test, they know something is going on with him they just have to figure out what which also leads us to getting genetic tested we will have that done in a few weeks also! Leksi and Johnny had their Halloween parties today they were great, the babies were a hit in there costumes. We are having the babies bday party on Sat I am so excited for that! Also I was approached by one of the ladies who works for SMMC and they have asked me to give a speech at the Tiny Tim fundraiser which benefits the SMMC NICU and the Lee Ann Britain developmental center, at first I was like OH NO there is no way I could do that but the more I though about it the more I thought how can I NOT do this? I spent 56 days there and they saved my children's lives so On Nov 7 I am giving a speech(in front of 1000 people) Lord knows if I will be able to get through it without crying but it will be my chance to say thank you, thank you for everything! If any of you know me you know that I am SO not a person who will just get up and speak so I am trying to prepare myself for it. One of the nurses who took care of B&B so many days at least 25 days she will be there and I am at least excited about that, that she and everyone else who had the babies can hear me and know how very important they are to me! On that note I should really go to bed It is a big day tomorrow my babies will be 1!!! Leksi and Johnny do not have school either I am excited they will get to hang out with them all day!! What a year what a year!!!!